Wow. I love your post, zenilshroff! I agree, many of us overthink things, but there’s nothing wrong with writing down and sharing our concerns. I’ll bet you have inspired others to open up to their MDs. Thank you!
Yeah we definitely need to put our apprehensions aside.
New to this board, but I find a lot of the discussions really interesting and sometimes infuriating. Stories like these remind me of the old days of diabetes, before insulin, and how THAT community responded to scientific advances.
There was a "treatment" before insulin and it was called The Allen Diet, named after Frederick Allen, a practitioner who actually did good science that showed the disease as a global metabolic disorder. He continued the science and developed an extreme calorie reduction diet for diabetics, only enough carbohydrates to sustain life, and it kind of worked. A lot of patients actually bought a few years of life by following it. The problem was that, for these patients, most of those years were spent in special hospital wings, skeletal shut-ins looking like concentration camp survivors. Not quite the quality of life I'm sure they were hoping for.
Here's the big difference though: When insulin was discovered, Frederick Allen saw the value and stayed true to the science on behalf of his patients. He ordered insulin vials--even before it was available to the general public--and worked on effective ways to incorporate this advance into the practice. With AUD, I hear a lot of doctrinaire proclamations about stepping and patient shaming (nevermind the abysmal success rates, if you really had tried, it would have worked), mixed with a lot of CYA responses from the medical community and yawns from pharma companies who can't even be bothered to update their patient leaflets because, hey, where's the profit in that?! Pretty shameful.
Welcome to OSL rmichael ...I agree with your sentiments about 12 step programs in general and AA specifically...I often compare having AUD and taking nal to being diabetic and needing insulin in order to live a healthy life. I believe the pharma companies don't update the dosing protocols of 1/day because, as joesixpack notes, they want repeat customers for this inexpensive drug. I am concerned with how many people follow the 1/day and find that it doesn't work to suppress their cravings, and can hurt them if they take a drink later in the day after the pill has worn off.
Only by pairing the nal with alcohol does the brain retrain itself and lose the connection between drinking and the euphoric endorphin rush it used to get.
Thanks for the interesting history lesson about Frederick Allen and the development of insulin.
zenilshroff I admire your clear headed and gutsy maneuvers to get nal and to be honest with your doc. It's really paid off and it may be that this doc in the future will have more patients with AUD he can help.
I got my doc to become a verified TSM prescribing physician on C3. He now has many, many AUD patients. As of today my original post about him has had close to 1400 views, so even if he gets 5-10% of those people actually coming in to see him, that's 70-140 new patients.
After he started prescribing for me and I had put up the post about him, I asked him if he'd heard from anyone yet. He said he hadn't but it had only been a few months. I told him that he'll probably see an uptick in patients in about 6 months time, based on my experience of needing that time to screw up the courage to try TSM. Sure enough within 6 months he was getting lots of new patients. I contacted him about getting some of the pill holder key chains from C3 to give out and he told me he had seen 3 or 4 people that day for nal.
He is overjoyed about having new patients and, more importantly, about having a tool that works for patients with AUD. Maybe your doc would also like to be verified. It would help his practice if it's that difficult to get someone to prescribe in India.
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